Photopooped!

August 12, 2018 Leave a comment
Categories: miscellaneous

Past And Present

August 10, 2018 2 comments

Here’s where I’ve been:

  • Taxol + Carboplatin + Avastin (standard first line of defense)
  • Avastin only (maintenance)
  • Gilotrif (targeted chemo, second line of defense)

Here’s where I am now:

  • Opdivo/Nivolumab (immunotherapy, third line of defense)

If you’re curious as to what the MSRP for each Opdivo infusion is:

And, since congress is owned by the drug company lobby, don’t expect the price to go down anytime soon.

Categories: Cancer

I Hate When That Happens!

August 8, 2018 4 comments
Categories: Cancer

The Weapons Depot

August 6, 2018 Leave a comment

The weapons of war on the top shelf are currently in use against the emperor’s army. Those on the bottom shelf are either no longer effective, or poised for reuse.

But alas, I remember the good ole days when both shelves were virtually empty.

The most effective, most expensive, weapon currently in use is under heavy guard at a fortified, off-site, biological weapons depot. It is deployed on the battlefield like clockwork every two weeks…

Categories: Cancer

Billy Rubin Is Too High

August 4, 2018 3 comments

Nurse: Billy Rubin is too high.

Me: Who is Billy Rubin, and what’s he or she smokin’?

How about you? Do you know who Billy Rubin is? I do now, uh, sort of, but I spelled Billy’s name incorrectly, and Billy is not a person.

Since we now know something about Bili, here are the most recent measurements of Bili’s presence in my tiger’s blood:

What does it mean when Bili Rubin is too high? It means something may be causing distress in one’s liver.

“Your liver takes the bilirubin from your blood and changes its chemical make-up so that most of it is passed through your poop as bile. If your bilirubin levels are higher than normal, it’s a sign that either your red blood cells are breaking down at an unusual rate or that your liver isn’t breaking down waste properly and clearing the bilirubin from your blood.” – WebMD.com

Statin drugs commonly used to lower cholesterol have been found to sometimes cause Bili Rubin to get too high. But when the emperor and powerful drugs like Opdivo battling the ferocious bastid’ are added to the mix, everything gets all FUBARRED. Trying to determine cause, and take action, becomes a CLUSTERF. It could be the statin, the Opdivo, or the emperor metastasizing again, or an emergent property of the diseased system. Such suspense!

I’m so excited. I can’t wait to see how high Bili Rubin is after my next doctor visit. During the interim, I was directed to inspect the colors of my peepee and poopee (hee hee)!

Categories: Cancer Tags:

Sleep/Wake/Eat… Sleep/Wake/Eat…

August 2, 2018 12 comments

I’m currently tapering off of a steroid (decadron) to reduce inflammation in one of my secondary brain tumors. The inflammation is the suspected cause of the latest “popup” complications of my cancer: a “balance” + tinnitus problem.

Since this is my third time in two years on “roids” (decadron/prednisone/decadron), I’ve had enough experience to detect the following, cyclical pattern of behavior while under the influence:

1) Sleep for 3 hours

2) Wake up and EAT, EAT, EAT

3) Hyper-Awake for 6 hours

GOTO step 1)

Or, if you prefer to reason about behavior modeling via “enginerd” state transition diagram views…

The “unnaturalness” of this behavioral pattern is very fatiguing, and not very good for weight control. However, all-in-all, it’s highly likely that it’s better than the behavior most likely to manifest during the alternative course of treatment ===> no steroids and death by brain hemorrhage. D’oh!

Nah, I’m just joking…. err.. am I?

Categories: Cancer Tags: ,

A Change In Tactics

It looks like the Emperor Of All Maladies (EOAM) has changed tactics. Instead of full frontal assaults, which have been successfully repelled to date by the bi-weekly Opdivo infusions, the clever bastid has tasked his forces with executing several small, simultaneous, surgical strikes. In the short span of approximately one month, here’s what has happened:

  • A skyrocketing TSH level in my blood indicates a dying thyroid ==> Time for some Synthroid!
  • A blood CK level 10x higher than the recommended max indicates some form of muscle damage==> Time to stop taking pravastatin and start taking some prednisone!
  • Some swelling has been detected in my brain in the same location on 2 consecutive MRI scans ==> Time to start taking some decadron!

Whoo hoo, bring on those ‘roids and all the wonderful side effects that come along for “free”!

Categories: Cancer

Before And After

Categories: Cancer

And How Are You Doing Today?

April 18, 2018 7 comments

Ok, so, who am I, and what should I do next? Out of curiosity, did you you ever ask those questions to yourself, especially the zen-like, first question? (The comments section is open, if you’d like to share 🙂

My last substantive blog post was on 11/17/17. In that delightful and uplifting post, I announced to the world that I was diagnosed with Stage 3B, Non-Small Cell, Lung Cancer (NSCLC). Phew, that’s a mouthful, but that’s the way it is in the world of cancer-speak.

Shortly after my world-shaking announcement, my oncologist declared that I had “advanced” to stage 4 – which meant that the cancer had migrated from its original source, my right lung, to elsewhere in the body. That “elsewhere“, ended up being my brain. After complaining about a painless, but noticeable, limp in my right leg due to an unexplained numbness, a full body MRI showed that 4 new tumors had popped up in my brain. Delightful!

After having each one of those little brain-shits blasted with radiation from Cyberknife technology, and having the four original tumors in my right lung assaulted with Opdivo immunotherapy infusions, I’m doing pretty damn good. And this is 2 years after the fact! How are you doing today? 🙂

 

So, as of today, 4/18/18, I’m doing fairly well, both physically and mentally, for a stage four cancer patient. At this stage of the game, the mental battle is extracting a greater toll from me than the physical battle.

I don’t know what, or when, or how often, I’ll be blogging about some topic in the future, but I’ll bet it will be about my experiences battling with the emperor of all maladies, the king of all diseases…. Cancer.

Categories: Cancer

Unprecedented

November 29, 2017 Leave a comment

In one year, Bitcoin has risen 10X. An incredible, unprecedented event in the history of investment. A substantial price pullback seems in the cards, but the world has never seen a financial innovation like Bitcoin.

Categories: bitcoin