Bulldozer00's Blog

Something doesn’t feel right. A familiar group of brain-tumor-sourced symptoms have joined hands, synchronized with one another, and ganged up on me yet again as expected when you have a terminal cancer diagnosis. My DHS (Daily Health Score) has been a big “goose egg” for 4 days in a row and I haven’t taken a shower in the last 3 of those low motion days. Whenever I get up and start walking, my entire right leg tightens, gets fatigued, crampy, numb, and vibrationally “hot”. In addition to the leg symptoms, my ears are “popping” often, I’m “woozy” all the time, and the ringing in my head has stepped up its volume. Yes, it feels like all those things are happening at the same time.

Because of the well-known cancer woes I just whined about above, I sent this S.O.S. message to my neurosurgeon’s office:

I will update this post when I hear back from the doctor’s office. In the meantime, I have my 46th Opdivo immunotherapy infusion today at 2. My goal for today is to take a shower today before going to the infusion. Quite a lofty goal, no?

UPDATE Jan 27, 2022: I started the steroid regimen and my MRI has been moved up a week. 👍